The Carcinoid NETs self-care tool from the Carcinoid Cancer Foundation, powered by Health Storylines™, lets you use the power of your story to personalize your care, create your own support network, and influence the way medicine works for people like you in the future.
Carcinoid NETs allows you to track important daily vitals related to your heart health, track your exercise routine, set medication reminders, and more. It gives you an accurate, shareable record of your experience with between physician visits, and helps you and your care-team collaborate on treatment and cardiac rehabilitation strategies.
Self Care Catalysts is a patient solutions, intelligence and analytics company that enables healthcare innovation. We are committed to advocating for patients and consumers when it comes to healthcare decisions. Our belief is that when patients are informed, respected, and engaged, they make better choices. Better choices mean better health outcomes.
Our team is based in Toronto and San Francisco, and is made up of a group of health researchers, scientists, doctors, healthcare experience designers and software developers with a desire to improve patient self-care.
Our mission is to build innovative, patient-centered, and technology-driven self-care solutions that complement medical modalities that will enable patients to continue managing their care outside of the clinical setting, with or without the support of healthcare professionals.
Below are some of our achievements to date:
No, Carcinoid NETs is not designed to diagnose a health condition. It is designed for the tracking and management of existing health conditions and is not a substitute for professional medical advice.
Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health and/or your particular situation. Never disregard professional medical advice or delay seeking advice because of something you have read on or learned on the Health Tools on Carcinoid NETs.
Included on Carcinoid NETs are a range of Health Tools to help you better manage your health condition(s). These Health Tools include a medication reminder, a symptom tracker, a daily journal, and more.
You can also personalize your Carcinoid NETs according to your health condition, to receive additional Health Tools.
Carcinoid NETs is intended for patients with carcinoid and related neuroendocrine cancers, and for their caregivers, using it on the behalf of the patient.
Yes, Carcinoid NETS is 100% free to download and to use. You do not have to pay to sign up for an account, and there is also no charge to continue using it.
We take reasonable steps to protect your personal information and self-reported health data from unauthorized access, use, disclosure or loss. Our platform has reasonable security measures (including online and offline physical, electronic and managerial safeguards) in place to protect against the loss, misuse and alteration of your data under our control. We use industry-standard encryption technologies to protect the data that you submit on our platform.
However, as with any transmission over the internet, there is always some element of risk in submitting personal information online and we will not be liable for any breach of data security caused by circumstances outside its control, including unauthorized network intrusions.
If you have any questions about the security on our platform, please send an email to our Privacy Officer at firstname.lastname@example.org.
If you have lost your phone, do no worry because there are many ways to locate your phone.
To keep your information safe, it is recommended that you go onto Carcinoid NETs on a different device (perhaps on a computer), log in, and change your password.
Listed here are some possible solutions to help you locate your phone:
On Android devices:
If you have location services turned on:
If you do not have location services turned on:
On your iPhone:
iCloud will show a map after trying to locate your phone
HIPAA is the federal Health Insurance Portability and Accountability Act of 1996. The primary goal of the law is to make it easier for people to keep health insurance, protect the confidentiality and security of healthcare information and help the healthcare industry control administrative costs.
Yes, the Carcinoid NETs platform is HIPAA compliant. All data reports that are generated from your self-reported health data entered onto Carcinoid NETs are aggregated, de-identified data. De-identification follows HIPAA safe harbor guidelines.
Carcinoid NETs is available on the web and also on your mobile device.
To access Carcinoid NETs on the web:
To get Carcinoid NETs on your Android device:
The Google logo, Google Play, and Android™ platform are registered trademarks of Google, Inc.
To get Carcinoid NETs on your iPhone or iPad:
The Apple iPhone® and iPad® are registered trademarks of Apple Inc.
Carcinoid NETs is free to download and to use, and you never have to pay for it. However, sometimes the Apple iTunes Store does ask for your payment information, and this is not associated with the use of Carcinoid NETs.
If you are creating a new Apple ID, you can choose the option of not inputting your credit card information. There should be a “none” option under “Payment Type”. If you already have an Apple ID, iTunes Store requires you to input your credit card information, but don’t worry, you can remove this information right after.
To remove this information, go onto the Home Screen and select Settings. Go to iTunes & App Store. Select your Apple ID then choose View Apple ID. Select Payment Type and choose None.
If you use Carcinoid NETs over a Wi-Fi network, no additional mobile data plan usage will occur. Using it over mobile data network may result in small increase in data usage. At this point in time, our app is based on web technology. As such, the app will use as much data as using a small lightweight website that does not have a lot of media that takes up data.
If you cannot log in, do not panic. Check to see if you have entered the right email or password. If you have forgotten your password, click on the “Forgot Password” link on the login page and then enter your email address on the next page. You will receive an email to reset your password.
You can only remove a condition if you have previously added a condition
By adding a condition, new Health Tools may be unlocked and added for you in order to better assist you in your daily life as well as giving better insight in your own well-being.
With the Medication Tracker, you can add multiple medications to your list, and set reminders so you don’t forget to take them. You can track whether you have taken or missed your medications each day, and even the reasons why.
You can only remove a medication if you have previously added a medication.
You can only track a medication if you have previously added a medication
You can only view you medication history if you have previously tracked your medication
Emotional health is important to your overall health. With the Daily Moods health tool, you can track your mood daily from a collection of positive and negative moods. By looking at the relationship between your health and your mood, the mood tracker can provide insight into how your condition and treatment may impact your emotional health, as well as effective coping strategies.
You can only view you mood history if you have previously recorded a mood.
With the Appointment Calendar you can note down all your doctor’s appointments to help you stay organized. You may also use this calendar to jot down any events related to your health.
You can only view your appointment calendar if you have previously added an appointment in your calendar.
At the moment, the app does not have notifications for appointments, but hold on to your seats because it is coming soon!
With the Symptom Tracker, you can monitor any number of symptoms you are experiencing as part of your health condition. You can customize your tool by setting it up with symptoms you typically encounter, and rate daily their severity and impact on your day. Once recorded, a graph will be populated to show trends over time.
You can only remove a symptom if you have previously added a symptom.
You can only view your symptom history if you have previously tracked your symptom
With the Journal, you can choose from a curated list of guided journaling topics to help you learn more about your condition, practice gratitude, recognize accomplishments, and achieve self-discovery. You may also choose to use it to journal about any other topics. Journaling is has been proven to be therapeutic for coping and dealing with recovery.
You can only view your journal entries if you have previously made a journal entry.
Healthy Doses is a health tool to take your mind off the clinical and medical aspect of dealing with a health condition. With Healthy Doses, you can collect doses of healthy wisdom for your mind and spirit.
You can only view your Health Doses if you have previously saved a healthy dose.
Using the Circle of Support feature, you can invite others who are part of your care team – whether they are your family members, close friends, or a caregiver – to follow closely on your daily self-care activities and progress.
They can send you messages of support through the secure messaging feature on the app, and you can also choose to share with them certain parts of your story based on your use of the different Health Tools.
By default, a person added to your Circle of Support will not see any of your Health Tools activity until you have decided to share it with them.
The person you invited will receive an email invitation to your Circle of Support.
Using the Groups feature on Circle of Support, you can organize your contacts into different groups and share different parts of your health story with them. The group system enables you to share some things with certain people, and not others.
To assign a person into a group after adding him/her into your Circle of Support:
After inviting the people you wish to be part of your Circle of Support and putting them into the different groups,
The My Storylines feature shows you your overall health story, based on your usage of the different Health Tools. By using the Health Tools regularly, you will see your health story unfold, giving you greater insight into your health. You can choose to show this page to your healthcare provider, which helps to facilitate your treatment management, or use it to inform yourself of how you are doing.